I have called my grandson Willie a warrior almost from his birth. Willie is scarred like a soldier who’s seen many battles. In truth Willie has had to fight battles. His premature birth set a tone to fight that continues to this day.
Willie came home with a colostomy and a wound that needed washing and medication. Thinking about his screams of pain during those treatments still bring tears to my eyes.
Willie has a fading scar on his abdomen from the reversal of his colostomy. He has a tiny scar on his forehead from an I.V. before he came home from the hospital.
Both his arms are bruised from him biting himself in anger and the battles in Willie’s life continue. After a meltdown on his school bus last week Willie had to come back home instead of going to school. This sent Willie into more of a meltdown. Once in the house Willie hit the ground running, literally. Then he slid fell backward and hit his head.
Willie’s life will more than likely always be a battlefield full of injuries and scars. There is no padding the way. Self injuries and those accidental ones are unavoidable and my little man is so strong. His tolerance for pain is very high. He came home from the hospital and still jumped around with such impact that it shook the floor. This is a part of Autism. The high tolerance for pain. Some scars we know the reason for, others, we have no idea where they came from. It’s a constant search. It’s a constant wariness. Is he okay? What happened here? No plastic bubbles or harnesses or helmets. Willie has to be free to run. He has to fall to pick himself up and to keep fighting his good fight.




I think to be Willie for a day would teach us some good lessons about fighting. And to be you for a day would teach lessons in patience.
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Thank you Glazed for those kind words.
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It’s that sort of strength that lends as nothing but pure inspiration to keep on keepin’ on every…single…day.
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I agree.
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Reblogged this on Golden Daze and commented:
. . . . . . This lady amazes me with the positive attitude she maintains, while raising an autistic child.
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Thank you.
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Thank you for the re-blog and your kind words.
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Go Willie! What a champ.
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Thank you.
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Children really are amazing.
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Yes they are.
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I’m always moved by stories like yours that most can’t understand. I used to teach at a Speech Development school. The main focus was Aphasia. Autism was also one of the main focuses. I met Christina when I was in High School. My mom was a children’s artist and her mom was one of her customers. I became so interested in her. I used to take her on outings. The day she came home with a balloon and told her mom what it was after working with her for the afternoon. Her mom cried. I was in High School, I was oblivious to everything until that moment.
Christina’s school was an hour away. I began volunteering there twice a week. Later I was offered a job. One year, I began driving Michael he was Autistic but so much more. He was six and knew every freeway! And how to get to and from his house to his school.
I was told that I couldn’t my class how to tell time. I thought if Michael can learn how to drive to his school and Christina can learn how to say balloon… I don’t believe that they can’t learn how to tell time. By the end of the school year they all had some pretty tattered construction paper clocks but they learned! I think in some ways they were brilliant. And that the parents (and grandparents 🙂 ) are their heroes!
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You are awesome. Thank you for sharing and being who you are.
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I have been away from my blog for so long that Willie is now 16 and I’ve been working on that blog for a while now. Reading your comment again is encouraging with trying to figure out this block stuff.
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